Lived Experiences of Parents’ of Children with Disabilities in Swaziland

Abstract

Raising a child with disability is a challenge to most parents. The study explored the lived experiences of parents of children with disabilities in Swaziland. The specific objective was to determine the challenges which parents of children with disability encounter at home, school and community, which may hinder them to work collaboratively with educators for the betterment of the children. A phenomenological design was adopted. Participants were parents (female =16; Males=4) who were purposively sampled from a rural setting (Maphalaleni area) whose children attended in 20 primary schools in the same area. Data were collected using semi structured interview guides and were thematically analyzed. The findings revealed that the parents encounter challenges at work, at home, school and in the community such as emotional stress, failure to cope with the children’s disability and financial challenges. The study also indicated that the parents were not sure of what was expected of them in making educational decisions on behalf of their children. It also reported that parents of children with disabilities were not trained on how to cope with their children’s disability and how to work with educators. The findings suggest the need for the development of training programmes which will empower parents with knowledge to better partner with educators for the benefit of the child. To address these challenges, government will need to put in place policies which will look at the needs of parents of the children with disabilities.